ME/CFS Parents - how did you find giving birth having M.E???? Help!

jojo

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how did you find giving birth having M.E???? Help!
Mar 2^nd, 2010, 10:31am

Hello

had a grt few mths off with M.E thanks to pregnancy hormanes. Now i startin to feel ill tried, have preg diabetes, my knees are inflamed, Havin physio for my pelvis is weak. dnt get me wrong i knw this all sounds very neggie. i love being pregnant my baby kicks all the time and i love it! i jus wonderin if ill be able to cope giving birth. i really dnt want to relapse.

JoJo

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Madeleine

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Re: how did you find giving birth having M.E???? Help!
Reply #1 - Mar 2^nd, 2010, 12:00pm

I think you will be okay giving birth all of us on here worried about the same thing and we all coped. I was so ill through pregnancy too and thought how am i going to have energy to even push but it was fine. My first labour was so quick i barely made it to hospital so it was quite easy but second was twelve hours so although it was tiring i still coped. Adrenaline will keep you going! Good luck

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xiaoqi

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Re: how did you find giving birth having M.E???? Help!
Reply #2 - Mar 2^nd, 2010, 1:51pm

hiya

how many weeks are you now?

i've got about 11 weeks til i have my 3rd. All three pregnancies/births i've had ME with and i honestly dont think it makes a difference. your body will do what it needs to do at the time, just have faith in yourself and try to enjoy the experience!

i sympathise with the other medical bits, i have diabetes and spd myself so i know the various complications it involves. You should be being induced due to the diabetes, so they will talk through the birth with you before hand to say what they would like to see happen and what pain relief they qould recommend etc. dont be afraidto ask questions and if you are unsure or concerned about a course of treatment, talk to them about it. everything should be ok though, ME doesnt have any implications so far as birthing goes.

good luck!

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jojo Newbie Offline Posts: 14	Re: how did you find giving birth having M.E???? Help! Reply #3 - Mar 2^nd, 2010, 4:33pm Hi!! I'm 28weeks now. I'm really hoping to be induced. Baby is already a 1lb bigger than wat he shld be at this stage!! we had a 4D scan. Hes so chubby!!! lol i've had 2 children before M.E. This is my 1st with. how far along are you? JoJo
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xiaoqi

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Re: how did you find giving birth having M.E???? Help!
Reply #4 - Mar 2^nd, 2010, 5:55pm

I'll be 27 weeks on thursday, so only just over a week behind you.

Are they keeping a good check on your diabetes and making sure your levels are down where they're meant to be? as that should stop baby from being too big and are they doing proper growth scans etc?

I've got my next growth scan on 16th, so only 2 weeks away and I'm looking forward to seeing him/her again!

Have they not discussed inductions etc with you yet? They should have discussed their plans for you by now even though you won't have a date yet, you should know what they're planning on doing.

When do you next see your consultant team?

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jojo

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Re: how did you find giving birth having M.E???? Help!
Reply #5 - Mar 3^rd, 2010, 3:36pm

Hi xiaoqi

Still in the dark at the mo. My midwife is on fri and hospital nx week. i need to ring diabetic clinic tell them my readings are highish. were away this wkend and i dont want to chance them bringing me in so i'll call them on monday (yes i knw thats bad but i really dont want to miss out on our 1 and only weekend break before the baby comes! Cry

)

why are you having growth scans? r u ok? they mentioned i may have to also.
We had a 4D scan. Totally amazing! baby is spit of his dad! Grin

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xiaoqi

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Re: how did you find giving birth having M.E???? Help!
Reply #6 - Mar 3^rd, 2010, 4:41pm

you have to have growth scans with diabetes because the babies can be so much (scarily!!) bigger! My DD was 10lb 3oz (3lb bigger than ds!) just because i had glucose intolerence (mild diabetes). So they scan to get an idea of what size the baby is/might be.

If I were you I'd phone them and tell them your readings and just say that you are away over the weekend but ask if your meds need adjusting or if you can pop in and see them and get home again? They shouldn't keep you in unless you're having real problems controlling them.

Do you mind me asking how high they are?

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jojo

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Re: how did you find giving birth having M.E???? Help!
Reply #7 - Mar 9^th, 2010, 10:20am

Hi xiaoqi

My highest reading has been about 10.8. do u think thats ok? the thing is. i'm so tried with m.e these days i just dnt have the energy to speak to anyone i knw thats bad. i also have a DD short for Dion. ive been sleeping all day again. ive really disconnected myself from people cos i just like the quite. did you have your baby early??

JoJo

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xiaoqi

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Re: how did you find giving birth having M.E???? Help!
Reply #8 - Mar 9^th, 2010, 1:01pm

10.8 isn't too bad at all - i get those readings even with insulin, but readings really should be between 4-6 two hours after eating, so i'm constantly adjusting my insulin to try and lower the readings. I would try and see the consultant as they may be able to help you get the readings down that little bit more. The issue is that the readings will continue to increase as baby grows and the strain on your body continues to rise, so it is better to get a handle on them now than to suddenly find you're getting readings of 16+

I had my DS just over a week early due to the diabetes and it was fab. This one will be 2-3 weeks early depending on the date they give me, but i've been told they won't let me get to/past 38 weeks.

I know it's exhausting with ME and pregnancy, but you do need to make the effort and get it sorted or it can cause a lot of problems for you and baby around the birth if your sugars are/have been too high.

*hugs* it is all frustrating and tiring and worrying, I do sympathise!

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jojo

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Re: how did you find giving birth having M.E???? Help!
Reply #9 - Mar 10^th, 2010, 7:05pm

hello!!

i'm abit more in the loop now!. i will also be having baby 2-3 weeks early. the latest 38 wks. doc realy wasnt happy with my readings. but i tried to explain that most times iv been sleeping through lunch and sometimes dinner. its not intentional. i had growth scan today. the doctor face was a picture when she saw measurements. the baby already weights 4lbs!!! i start insulin tomorrow. does that slow the babys growth??? how are you?

JoJo x

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xiaoqi

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Re: how did you find giving birth having M.E???? Help!
Reply #10 - Mar 11^th, 2010, 9:56am

the insulin should control your sugars so that the baby grows at a normal rate rather than at the impressive rate it was doing. Depending on how good you get it, you may still be headed for a whopper, but we'll keep everything crossed that the combination of early induction and insulin means you get a pretty normal sized baby!

I'm doing ok thanks, I've got my 28 week growth scan on Tuesday so I'll be able to tell you how big Ermentrude is in comparison to your bump then

It is very tiring carrying a big baby - i remember it well! But they'll be keeping a good close eye on you now and hopefully you won't get baby growing too ginormous over the next 8 weeks. Are you getting more growth scans as you get closer to the birth?

I have my MIL and her friend coming on Saturday for a week so I'm busy sorting the house out at the moment. Not so well assisted by my two monsters though Wink

Lok after yourself, and good luck starting the insulin. Which one(s) have they put you on?

If you find you get a hypo (where your blood sugar drops below 4) and you're feeling unwell - have a hot chocolate and some toast as this brings the levels back up and keeps them at an even level quite well. It is also a good idea to have some dextro/lucozade tablets in your pocket/bag all the time 'just in case'. Fingers crossed you'll be able to get used to the insulin without too many problems.

Nikki

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Dani

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Re: how did you find giving birth having M.E???? Help!
Reply #11 - Mar 12^th, 2010, 7:48pm

I had spd and pregnancy diabeties to and Nikki is a wonderful source of information!!!

she really allayed my fears and explained a lot to me

The growth scans are only a guide Luke was 3lb lighter than the scan done 4 days before he was born, so don't worry yourself unnecessarily if the numbers are high.

I'm a confirmed fully paid up chocoholic so sticking to the diet was hard.

I spoke to the diabetic nurse on a monday and wednesday and saw her on a friday with my readings and she would adjust them on the phone - at the start 10 was not unusual and they expect some wobbles - it takes people months to get their "proper" diabetes balanced and we get weeks to make it work with the baby having growth spurts and messing them up!

The other thing to be aware of is you start with a few units of insulin and it ramps up as you get further along - this is normal - it worried the life out of me so much I had basically stopped eating! I strated with 2 units 3 x day and ended up on 10ish 3 x day. I know nikki said this wasn't a huge amount which really helped me stop worrying about it!

Be aware of hypos mine were like what happens when my ME wobbles so I wasn't recognising them until I was at 2 which is low. I had a packet of jelly babies in the cupboard and a couple would give a sugar boost enough to bring me up then toast etc. Options hot chocolate is ok to as it is sugar/fat/carb low which I found really useful as I don't drink hot drinks and it helped the chocolate/sweet cravings

Ok will write later about birth but luke (18 wks) is screaming for attention again - been one of those days Huh

HTH
Dani
whos really good at waffling

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Me 40 Mark DH 39 Matthew 6 and Luke born nov 09 Had ME for 22 years use w/chair outdoors only get out with help at present

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jojo

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Re: how did you find giving birth having M.E???? Help!
Reply #12 - Mar 13^th, 2010, 10:18pm

Hello ladies!! (Nikki & Dani)

Your advice has been great!! i cant tell you enuff how great it is to talk to people who have the same condtions.
My M.E really flared up yesterday! my knees a were inflamed and the tiredness was making me feel like i wanted to pass out! i got checked ova by the doc it was nothing to do with the diabetes, my bloods were good. i had my first insulin injection today and even tho been watching my diet still read abit high but not to much.
i had growth scan, doc said hes well above average!! Grin

hes weighs 4lbs! lol doc said induce 38weeks but if he keeps going at this rate we may to induce at 36weeks!
i'm much better today! done a few bits and went shopping. much more than i did yesterday, i could bearly move. Cry

The insulin i'm on is called humalog. i have now been signed off work untill i start maternity leave. full time work is just too much for me at the moment.

Its Mothers Day tomorrow!!! hae a lovely one!!!!

JoJo xx

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xiaoqi

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Re: how did you find giving birth having M.E???? Help!
Reply #13 - Mar 21^st, 2010, 6:36pm

I'm glad all is going well so far diabetes-wise! Fingers crossed you've had a better week ME-wise, and continued feeling better.

I've been busy with the inlaws all week but had my 28 week growth scan on tuesday and everything is fine with baby - who is measuring pretty much bang on what it's meant to. Ranging from 25-40th centile for bone measurements and about 70th for abdominal circumference, and so levelling out at just below 50th for weight - 2lb 13oz at 28+5. Already in the count down to the next one in just over 3 weeks time.

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